Development of a core outcome set for clinical research on interventions for speech impairments in Stroke
This research is about achieving consensus agreement of a core outcome set for research and clinical practice.
This means we will seek agreement between three key groups to establish what aspects of speech recovery should be measured after stroke and how we should measure them. The three key groups are stroke survivors, researchers and clinicians (mainly speech and language therapists) who have experienced (or worked with people who have experienced) dysarthria after stroke.
What would I be asked to do if I took part?
You will be sent an email asking if you are happy to carry out an online survey lasting 30 minutes to 45 minutes. Two months later you will be sent your results from this survey and asked to carry out another survey online via email. This will take about 30-45 minutes to complete.
Two months later you will be sent an email with all of the results from the three groups and asked if you would like to attend an online (zoom) meeting two hours long to discuss and agree the findings from the survey i.e. agree the core outcome set (COS-Speech).
Following the survey you will be invited to two follow up consensus meetings. If we have too many people from a particular group we will select in order of the first to respond with their completed consent form. These are online (zoom) meeting each one hour long:
- First consensus meeting to discuss the survey findings and vote on any that are uncertain following the survey, discussion to make sure everyone is in agreement
- Second consensus meeting to look at existing tests/scales/measures to see if any of these can be used with the agreed core outcome set.
Eligibility
You have had or still have dysarthria following a stroke, this can be a recent stroke or a stroke at any time in your life and live in the UK or Australia. You have been involved in research or clinical practice that involves any sort of communication impairment as a result of stroke
Register your interest
To register your interest please email: COSpeech@manchester.ac.uk
This study has been approved by The University of Queensland Human Research Ethics Committee [Approval No. 2022/HE000641]